- His ketones fell to moderate due to a faulty batch of eggnog, ergo seizing.
- Overcompensation led to large ketones and some symptoms of excess ketosis.
- We gave him apple juice (2ml) to prevent him slipping into coma.
- Turns out, he had a cold and the juice threw his ketones back down.
- More seizing and now a sick baby. Sigh. We meant well. :(
P.S. - Fawn and Elizabeth, I consider myself lucky to have such thoughtful & knowledgable keto-mentors! Thank you. :)
P.P.S. - Several of Bertrand's labs came back abnormal: CO2 13, normal range 18-24; Anion Gap 21, normal range 3-16; ALP (alkaline phosphatase) 379, normal range 145-320. Since I haven't heard back from Bertrand's keto team, I assume that these are standard keto-kid deviations.
P.P.P.S. - We'll be leaving tomorrow to visit family in Kentucky, so blog posting may become patchy. But, we are grateful for such wonderful friends as you. You will all be in our minds and hearts over the holday season! :) Happy thanksgiving!!!
Regardless of the type of theraphy (AED, keto, whatever) a cold invariably makes seizures worse. We definitely saw this first hand. It's disheartening, but at least you know the reason for the change in seizure activity... and colds don't last forever! :)
ReplyDeleteLittle slip-ups are BOUND to happen, so don't be too hard on yourself. Besides, it sounds to me like you guys are doing everything right.
Have a wonderful holiday in Kentucky!