Milestones? Inchstones? By any measure: Progress!

Matthew, Bertrand & me (+Victoria at 37 weeks 3 days gestation).

This morning, Matthew and I woke up to the sound of Bertrand having another of his long, looping seizures. Not a good sound to wake up to. Just when some of Bertrand's other seizure types are lessening, another pops up. It's like whack-a-mole.

(We need help identifying Bertrand's weird looping seizures, so I'll post a video later this week. If we can identify these seizures, then maybe we can treat them or know why his medication either causes them or doesn't work on them.)

Understandably, I think, watching Bertrand suffer from the seizure itself and it's aftereffects, coupled with the prospect of facing yet another medical hurdle dampened my spirits. To cheer me up, Matthew began to list Bertrand's progress, regained skills (*) & new ones.

Weight-loss: over 1 pound in 2 weeks

Weight-bearing: up to an hour daily in 2 weeks

Bearing weight on legs*

Taking steps with gait trainer*

Playing in the bathtub*

Picking-up toys on 1st try

Smiling at known & unknown people

Demonstrating recognition of people & things

Tracking adults, children & animals*

Vocalizing with people*

Searching for the source of a sound

This is all in addition to other items we are grateful for, starting with the fact that our precious son is alive AND HAPPY. He will meet his little sister and she will know him. He doesn't depend on a g-tube, trach, vent, oxygen... he is relatively healthy with no recurring infections, and much more. We are truly fortunate--even if Bertrand now has weird looping seizures. :)