Hannah and her man, July 2009.
Yesterday evening, our darling Little Miss Hannah passed away.
The injustice, anger, and grief is suffocating.
Bertrand's sweet girlfriend deserved so much more! A long life, health, education, kids, grandkids... even a boyfriend who didn't snatch her toys and whap her with them.
Hannah left the world far too soon. She left behind a legion who fervently love her, and armed them with her grace, tenacity, and courage.
We will continue to fight for her.
We will find a cure.
We will always love you, Hannah.
Hannah's 3rd birthday party, July 2011.
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Hannah Ostrea, born July 25, 2008, passed away peacefully on December 4, 2011, surrounded by her family following a lifelong battle against Neuronopathic Gaucher’s Disease. In our hearts, she is now free from the prison of this disease and is able to run, play, and be able to dance to her favorite song, Ice, Ice, Baby (Glee version!).
She lived for only three short years, yet her beautiful smile, intoxicating charm, and her courageous fighting spirit forever captured the hearts of everyone who had the opportunity to get to know her. Even though she was never able to speak a word, her expressions, her laughs, and her eyes were able to speak volumes.
A celebration of Hannah’s life will be held at the King David Chapel (inside Palm Eastern Cemetery) on December 11th at 12:30 pm. It is open to all who loved her, help care for her, and who have had their lives touched by our Little Miss Hannah.
** We ask that those who join us wear pink, yellow, (her favorites) or other vibrant and bright colors and refrain from black attire. Because of her love of Minnie Mouse, we also encourage Disney attire and accessories. **
In lieu of flowers, please consider a donation to:
Hannah Ostrea Fund
c/o Wells Fargo Bank, Acct #2196312850
640 South Green Valley Parkway
Henderson, NV 89052
These funds will be used towards the creation and development of Hannah's legacy, the Little Miss Hannah Foundation.
Sincere sympathy for all who loved her.
ReplyDeleteBarbara
I'm so sorry to hear about this -- what a nightmare for anyone to go through.
ReplyDelete