March 26, 2013

Purple Day 2013



Another year, another Purple Day. Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th people in countries around the world are invited to wear purple and host events in support of epilepsy awareness.  The Bertranator wore his purple today.  How about you?  :)

"I'll be back... after school."

March 21, 2013

WSJ: Gene Therapy Spurs Hope


Gene Therapy Spurs Leukemia Hope

Researchers are reporting a new strategy in the cancer fight that eradicated the disease for five patients with lethal cases of leukemia. Ron Winslow has details on The News Hub.
Researchers reported fresh evidence Wednesday that using gene therapy to manipulate the immune system is emerging as a promising new strategy in the fight against cancer.
Five patients with a lethal leukemia achieved complete and rapid remissions after the treatment, in which cells from their own immune systems were genetically altered to specifically attack the disease.
While the study was small, researchers were impressed that the cancer was eradicated in all five patients. In one patient, all evidence of the cancer was gone eight days after treatment.

March 20, 2013

First Contact!

We break the 2 month blogging drought to bring you an internet happy dance:
We had our first contact with another NGLY1 family!

On the first day of spring, we couldn't have asked for a better sign of new life or hope.  :)



While we have our reasons, as an apology for not blogging, here are some photos from the phone.  


Bertrand's new haircut elicited lots of thumbs-ups and fist bumps from guys!  
...and death threats directed at the clipper wielder from the women in his life.  
Needless to say, we may be watching our backs for his next hair cut.  ;)


We call him the Buddy Lama.  :)
He is our teacher.  He exudes peace and enlightenment.  


Standing, holding his own bottle, AND being ridiculously good looking all at the same time!


This pose is more of a Sergeant Buddy.  
You can actually believe he weighs 51 lbs in this picture.


Bertrand T. Might, the Most Interesting Man in the World.


We're already not cool enough to be seen in public with her.


Victoria, l'artiste.


Making her mother proud.  :)


The essence of Victoria.